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A Brother’s Story

Today’s spe­cial guest is a reg­u­lar vis­i­tor around here, and some­one who has a lot of fun in life and in his writ­ing.  When he’s not sav­ing lives or out for a long run, you can find him as a reg­u­lar con­trib­u­tor over at the Calo­rieLab web­site.  Please help me wel­come Dr. J, as he shares a very spe­cial story about his sis­ter, and what her pres­ence has meant in his life.

A lit­tle bit about Dr. J, in his own words:
I am a Florida sur­geon and fit­ness freak with a black belt in karate.  I run 50 miles a week and fly a Chero­kee Arrow 200.  Of course it wasn’t always like this. I once had a care­free life, rid­ing my bike, play­ing with my dog, but then school edu­cated me and there was no turn­ing back.

Even­tu­ally I had more let­ters after my name than in my name, a mort­gage and a job at a major uni­ver­sity with a lizard as its mas­cot and known bet­ter for it’s foot­ball team than most any other accom­plish­ment. In my spare time I have added some skills which are both use­ful and fun, became a run­ner and found the Inter­net. Thanks to Calo­rieLab, I have been lucky enough to have been writ­ing the Dr. J will see you now col­umn for almost two and a half years. This has allowed me to go beyond the sur­gi­cal arena and offer my irrev­er­ent, slightly irrel­e­vant, but pos­si­bly use­ful opin­ions on life, health, and fitness.

A Brother’s Story

 

Hochklettern Dy 47
Creative Commons License photo credit: Arwen Abend­stern

“Obsta­cles don’t have to stop you. If you run into a wall, don’t turn around and give up. Fig­ure out how to climb it, go through it, or work around it.” ~ Michael Jor­dan

I don’t think any­thing can ever sur­pass the joy par­ents feel with the birth of a child! I know it was a spe­cial day for my par­ents when the J-Sister was born. My mom had sev­eral mis­car­riages prior to that blessed day as my folks wanted a girl to com­plete and bal­ance their fam­ily vision, already hav­ing two driving-them-crazy grow­ing young boys! Mom how­ever was not able to con­ceive again. Because of this sit­u­a­tion, there was a dif­fer­ence with this child, because unlike the ran­dom chance of my brother and I, the J-Sister was a cho­sen child.

Yes, she was adopted, although for all of us, this is merely a descrip­tion, not an emo­tion. She was a lovely child, and unlike with my brother and I, those first few years were an effort­less voy­age for my happy par­ents. Then small dif­fer­ences began to arise. She was not talk­ing as soon as my brother and I had, but then we were very early talk­ers. She was not respond­ing as quickly to exter­nal stim­uli as my brother and I had, but then we were boys. She was not the same as my brother and I, but then she was adopted and we were not. Even­tu­ally, how­ever, the dif­fer­ences became too great, and the ratio­nal­iza­tions became less com­fort­ing and answers needed to be found.

When my sis­ter was four years old she under­went a very com­pre­hen­sive eval­u­a­tion of her sit­u­a­tion and the result of this was that she was deemed men­tally retarded, hope­less, and the rec­om­men­da­tion was made to be pre­pared to insti­tu­tion­al­ize her for life because of her defi­cien­cies and inabil­ity of be a nor­mal person.

Whether retarded, or hand­i­capped, or devel­op­men­tally delayed, or any other polit­i­cally or non-politically termed phrase is used, I can’t imag­ine it being any less dev­as­tat­ing to a par­ent to hear that their child will never be normal.

I’m sure for my par­ents, that moment felt like a car going full speed and sud­denly run­ning into the side of a moun­tain! The thing was, my par­ents, with dreams shat­tered, faced this moment with a courage almost beyond what I can imag­ine. Rather than sit feel­ing sorry for them­selves in that car wreck and set­tle for this diag­no­sis of hope­less­ness, they decided that it was their cho­sen mis­sion to raise this child. My par­ents began at that moment, using every skill and facil­ity that they could sum­mon to aid in this unimag­in­able endeavor, to dig a tun­nel through that moun­tain, though there was no light in sight in that slow mov­ing bur­row, yet they per­sisted with a con­sis­tent strong deter­mi­na­tion to get to that other side, that imag­ined bet­ter place.

So the process began, one vowel and con­so­nant at a time, one but­ton and but­ton hole at a time, one shoe lace and one grom­met at a time. I’m sure when Vel­cro came along my par­ents felt it was one of the great­est of humankind’s inventions!

With this mag­nif­i­cent effort, my sis­ter began to show progress, albeit very slowly, but it was enough of a reward to help keep the process going.

As my sister’s abil­i­ties grew, she ven­tured out onto the street where we lived. I can sadly recall her run­ning home, tears on her cheeks yelling with her lim­ited vocab­u­lary, “Yeve me ayone” to the neigh­bor­hood chil­dren who had noticed her dif­fer­ence, and she was dif­fer­ent, as they picked on her with­out mercy. My brother and I had prob­a­bly con­tributed pre­vi­ously, as any older broth­ers might, though not with cru­elty, to her prac­tice with that use­ful defen­sive phrase.

My par­ents stayed steady with that mis­sion, spend­ing every avail­able moment work­ing with my sis­ter, find­ing schools and out­reach pro­grams that spe­cial­ized for chil­dren with these obsta­cles. She even­tu­ally attended a spe­cial high school estab­lished by the Kennedy fam­ily in Hyan­nis­port, Mass­a­chu­setts, and went on to be mar­ried in Sali­nas, Cal­i­for­nia, after meet­ing a young man in Oak­land while attend­ing a spe­cial pro­gram there. My wed­ding present for the happy cou­ple was a hon­ey­moon in Carmel, which I chap­er­oned for them. (very dis­cretely I might add)

Today my sis­ter is a com­pletely self suf­fi­cient, fully employed, socially excep­tional indi­vid­ual with numer­ous friends and accom­plish­ments. Yes, she is still dif­fer­ent, that can not be hid­den, but it does not deter her. On a fam­ily vaca­tion not that long ago, I per­son­ally wit­nessed her walk into a room with fifty peo­ple, and within 15 min­utes every one of them knew her, and liked her!  She has not let her dif­fer­ences keep her from being all the per­son she could be. When we talk, I may men­tion some chal­lenge or dif­fi­culty I am fac­ing and it is not uncom­mon for her to say, “You can do it, J!” This com­ing from some­one who cer­tainly knows what it is to do it when only a select few believed in her.

So if you are think­ing that, per­haps with your weight and fit­ness, or any other chal­lenge that is in your path, that this moun­tain in front of you is insur­mount­able, think of that moun­tain that my sis­ter climbed, and is still suc­cess­fully climb­ing, and if you feel that you just can’t, remem­ber her words to me, “You can do it,” because you know, like her, you really can!

Lance writes sto­ries from his heart, aim­ing to inspire and moti­vate, as you align more fully with YOUR true peak. When he’s not here, you can find him hang­ing out with his fam­ily, rid­ing a bike, or just gen­er­ally act­ing goofy.   Sign up for the Thoughts from the Tree­house newslet­ter and get addi­tional inspi­ra­tion in your email inbox!
Lance Ekum
View all posts by Lance Ekum

Comments

  1. scheng1 says:

    So glad to hear that your sis­ter turns out all right. She must be the joy of the fam­ily. I can­not imag­ine the tears your par­ents had shed over her. Truly remark­able fam­ily.
    .-= scheng1´s Last Fab­u­lous Post ..5 steps to a suc­cess­ful life =-.

  2. Chania Girl says:

    This was a beau­ti­ful post, Dr. J, and one that gave me the shift in per­spec­tive I needed today. Thank you for the reminder and the encour­age­ment.
    .-= Cha­nia Girl´s Last Fab­u­lous Post ..What Makes a Hero =-.

  3. Lynn says:

    What a lovely story and you are right, so moti­vat­ing. You are a great brother, too!
    .-= Lynn´s Last Fab­u­lous Post ..Peek­ing out, hooky and bask­ing =-.

  4. J.D. Meier says:

    > She has not let her dif­fer­ences keep her from being all the per­son she could be
    That says it all right there.

    Beau­ti­ful story and I espe­cially like the fact it’s from a slice of real life.
    .-= J.D. Meier´s Last Fab­u­lous Post ..Don’t Regret the Path Not Taken =-.

  5. Mindful Mimi says:

    Hi Dr J,
    This story really touches me. I had cousin who was dif­fer­ent. He sat in a wheel­chair all his life and recently passed away at the age of 40. I think these spe­cial peo­ple come into our lives for spe­cial rea­son and every­one should know such a per­son. They add so much to ones life. I am glad to have known my cousin. He changed my view on what it means to be dif­fer­ent.
    Thank you for shar­ing.
    M
    .-= Mind­ful Mimi´s Last Fab­u­lous Post ..Sun­day laugh =-.

  6. Kristie Ryan says:

    Hello Dr. J,

    What a inspir­ing story! It is amaz­ing to think that because your sis­ter was sur­rounded by a great sup­port group of those who loved her she was able to become the per­son she is today. Your parent’s ded­i­ca­tion really made such a dif­fer­ence in her life. Con­grats to her and them and you!

    ~Kristie

  7. I love my Dr. J! Amazing!

  8. Tim says:

    Hi Dr. J.:

    Thank you for shar­ing that incred­i­ble story, it was very uplift­ing and moti­vat­ing. It is a great exam­ple of how, if we stick to some­thing impor­tant, we can truly get to where we want or need to be. I also loved the Michael Jor­don quote which makes me real­ize that just because he made it look easy doesn’t mean he didn’t work hard to get there. Thanks Lance for for­mally intro­duc­ing us to some­one with a great story!
    .-= Tim´s Last Fab­u­lous Post ..Apply­ing Improv to Every­day Life =-.

  9. Dr. J,

    You’ve crafted an uplift­ing story — I appre­ci­ate you.

    One of my best friends in grad school was Tim, the kid on the bus I took to school every day. He was ‘devel­op­men­tally chal­lenged’ and worked at the local McDonald’s, but made me laugh with joy every ride to school. I loved him. I actu­ally saw him while shop­ping for sup­plies once, and he ran toward me and gave me the biggest bear hug I’ve ever received.

    Your story is touch­ing and I am so glad you’re here at Lance’s site. Thank you to both Lance and Dr. J.

    ~xo
    Lori
    .-= Lori (JaneBeNimble)´s Last Fab­u­lous Post ..Front Porch: Bhangra, a Dingo, and a Beach – with John Anya­sor =-.

  10. You know some­thing? I feel dis­abled when­ever I try some long project in Eng­lish. It’s a pain to deal with writ­ing a book, or even a blog, in a for­eign lan­guage, espe­cially if you aren’t liv­ing in any Eng­lish speak­ing country.

    And yet, when­ever I stop writ­ing, the “dis­abil­ity” is gone. This expe­ri­ence has let me appre­ci­ate the effort of those who have dis­abil­i­ties all the time, what­ever they do, what­ever their choices.
    .-= Miguel de Luis´s Last Fab­u­lous Post ..La ley del colum­pio =-.

  11. Hilary says:

    Hi Dr J and Lance .. a touch­ing story — and some­thing as a doc­tor I guess you use as a ‘teach­ing story’ to so many oth­ers with sim­i­lar chal­lenges — they can be over­come — with love, hope and time.

    Sto­ries of hope — are won­der­ful .. and thank you for shar­ing this so much — appre­ci­ate these words .. I love learn­ing — these sto­ries teach me so much about oth­ers, which I have in my ‘arse­nal’ of life and how per­haps at some stage I can help oth­ers with this knowl­edge .. It’s a real­i­sa­tion I’ve come to since my mother has been seri­ously ill .. I know and appre­ci­ate so much more –some­thing I’d never have expe­ri­enced had this not happened ..

    Thanks for the story — have a good week — Hilary
    .-= Hilary´s Last Fab­u­lous Post ..Fancy a Cor­nish Cream Tea? In Corn­wall, in Tokyo or at home? =-.

  12. Debbie says:

    I had a pretty severe brain injury three years ago from a sui­cide attempt. So, I kinda think I can relate to your sis­ter or any­one men­tally chal­lenged. I feel like I have been there. Even though some things were def­i­nitely much harder, it is not nec­es­sar­ily less…just dif­fer­ent. Because some days all I could man­age to do was empty the dishwasher…and that was an accom­plish­ment, it forced me to find value in myself in a place other than what I achieved or owned and had me dig deep to find the courage and strength and deter­mi­na­tion I did not even know was there. Life was so much sim­pler, and I lived in the moment effort­lessly because it was all I could do. Actu­ally kind of nice. Some­times I miss it.

    I have made a remark­able recov­ery when the med­ical com­mu­nity did not give me much hope. The few pre­cious peo­ple around me who did were invalu­able. Like your sis­ter, I devel­oped a tena­cious deter­mi­na­tion and pos­i­tive out look because “the bet­ter it gets, the bet­ter it gets.” I real­ized that I had the power to make it bet­ter and to cre­ate my world. We all do.

    Thank you for the reminder and such a touch­ing and inspir­ing story.

  13. Dr. J says:

    I can’t thank Lance enough for hon­or­ing me and my sis­ter for his kind­ness in pre­sent­ing her story!

    She has been a trea­sure in our fam­ily and in many ways has achieved more than any of us! To this day, she con­tin­ues to grow as an individual.

    I really have enjoyed read­ing all the kind and thought­ful com­ments and intend to visit every web site.

    Thanks again!

    Dr. J
    .-= Dr. J´s Last Fab­u­lous Post ..Lab Notes: Pre­ma­ture Births Decline for Sec­ond Year in a Row; Liv­er­pool Wants to Dump Word Obe­sity =-.

  14. Pros Tenorio says:

    Con­tinue to count your bless­ings. Pro­claim your rar­ity . Go another mile. Use your power of choice wisely. And do every­thing with LOVE. Godspeed.

  15. beau­ti­ful inspir­ing story
    .-= Laura Hegfield´s Last Fab­u­lous Post ..Sim­ple Seren­ity: Earth & Sky in a Pud­dle =-.

  16. Scenografia says:

    Thank you for that sig­nif­i­cant write-up! I should say also have a web log and i’m ques­tion­ing, how can i acquire this kind of great theme sim­i­lar to your own?

  17. Megan "JoyGirl!" Bord says:

    That is an absolutely touch­ing story… I’m so happy I read it today!

    Lance, thank you for fea­tur­ing another awe­some guest author!
    Dr. J., thank you for shar­ing your beau­ti­ful, mov­ing story with us.

  18. Robin Easton says:

    Dear Dr. J, This is one of the MOST beau­ti­ful astound­ing sto­ries of love and courage I’ve EVER read. I sat here cry­ing, and not from pity or sad­ness, but from LOVE. I felt enor­mous love for you and your whole fam­ily. WOW!! I felt wrapped in love, courage, “right­ness”, safety, good­ness and so much more that I don’t even have words for. This story reminds us of the power of human per­sis­tence, courage and love. In the pres­ence of these things we are trans­formed and healed. We may still have any num­ber of chal­lenges to deal with, BUT inside we are in our right place of Love, Pos­si­bil­ity, Con­fi­dence, Courage and that sense that Life is worth liv­ing. My life is made richer know­ing that there are peo­ple like you and your fam­ily in the world. Thank you SO much. Robin
    .-= Robin Easton´s Last Fab­u­lous Post ..Are Your Maps Hold­ing You Back? =-.

  19. Audra Krell says:

    Won­der­ful story Dr. J. I was so scared at the begin­ning of your story that some­thing would hap­pen to your beau­ti­ful sis­ter. I have three boys and like to think that if we ever adopted a lit­tle girl, they would be just as kind and lov­ing as you have been. Thank you for sharing.

  20. suzen says:

    Hi Lance! Excep­tional guest!

    Hi Dr. J.! Well you are singing my song “I can DO it!” Your story is an inspi­ra­tion and won­der­ful exam­ple of just tak­ing one day at a time, one step at a time, and hav­ing that can-do atti­tude all the while! Nobody promised us our lives would be easy, but with the right atti­tude I truly believe any­thing is pos­si­ble! Bless your sis­ter for show­ing that to every­one!
    hugs
    suZen

  21. Lance says:

    Dr. J,
    Thank you for shar­ing this story here. As I think about your sis­ter, and really the light that she shine out into the world — I am quickly reminded that each of us, really, are dif­fer­ent in some way — from every­one else. And maybe it’s not as notice­able — so it doesn’t stand out. And it can be all too easy to treat “dif­fer­ent” as dif­fer­ent. Or to go along with the crowd. Or what­ever. And the truth is — it is our own inse­cu­ri­ties that can cause this. When we can move beyond them — we see the human­ity in everyone…and the gifts that each has to share.

    What a gift your sis­ter is! And that shines through so brightly here! And what a great brother she has in YOU!!

  22. Lance says:

    All,
    Thanks so much for the com­ments. As I read this, I am moved by the power of love, and what it IS capa­ble of! And that’s some­thing I feel very much in all of these words you have all shared. What a beau­ti­ful gift you all are!

  23. LisaNewton says:

    As usual, I’m late, but thank you for the inspi­ra­tional story, Dr. J. Lessons learned and processed. Every child is spe­cial, in their own unique way, and your sis­ter is an exam­ple of this thought. She brings her own unique light into the world. I feel grate­ful to have read her story.

    Thank you!!
    .-= LisaNewton´s Last Fab­u­lous Post ..Los Ange­les’ Newest Historic-Cultural Mon­u­ments =-.

  24. Patricia says:

    I truly love this story and the lovely way it was writ­ten and shared. My father worked with dif­fer­ently able chil­dren and adult — believ­ing every­one had mean­ing and worth — he was slated to become Sec­re­tary of Edu­ca­tion under Pres­i­dent Kennedy when the assas­si­na­tion occurred. He pro­foundly changed the lives of so many chil­dren and their fam­i­lies — Bril­liant and loving.

    Our youngest child is adopted and has a cleft palate (repaired), lesion in the brain over long term mem­ory and no ear tubes. She has just grad­u­ated from col­lege and is mak­ing her way, when so many said — Let her fail and teach her her place.…She is a warm, lov­ing per­son and I think the world will be her oyster…her Asian name means Pearl of Truth.….

    Your sis­ter cer­tainly inspired you and keeps on inspir­ing — what a legacy! what a gift!

  25. Joy says:

    Thank you for shar­ing this most touch­ing inspi­ra­tional story. Exactly what I needed to read as this day draws to a close. Thank *you*:)

  26. What a beau­ti­ful story of love of a brother for his sis­ter. Thank you so much for shar­ing this feel good story. The world needs more of this type of story in the news.
    .-= Patri­cia — Spir­i­tual Jour­ney Of A Lightworker´s Last Fab­u­lous Post ..A New Chap­ter In Incest Recov­ery =-.

  27. Wilma Ham says:

    This shows to me what LOVE can do. These days LOVE is get­ting more and more the credit it deserves, a pow­er­ful energy that cre­ates mir­a­cles although LOVE will see this as nor­mal.
    It is so won­der­ful to hear these sto­ries so lov­ingly shared, it is so impor­tant to know WHAT is impor­tant above all the mate­ri­al­is­tic things we think we can­not live hap­pily with­out.
    I thank your fam­ily, I thank you for shar­ing your love and show­ing us its power. xox Wilma
    And Lance I love you too, :)

  28. vikum says:

    Hi Dr. J,
    What a story? Not only you have pumped some energy into our souls but also you’ve touched our hearts with love and warm human­ity of your fam­ily that brought your sis­ter to the life that she lives today.
    Thanks much Dr. J . You are an awe­some brother !
    And thanks a lot Lance for bring­ing Dr. J in today !
    .-= vikum´s Last Fab­u­lous Post ..Lance Arm­strong: Why he is on my wall? =-.

  29. Oh how touch­ing. .…for rea­sons that I will leave undis­closed, there is a moun­tain just as high that my lit­tle brother had to climb and I know that God or the uni­verse chooses these souls care­fully because I could not have climbed it if I were in his shoes, so thank you for a beau­ti­ful reminder on a coura­geous set of souls, your sis­ter and your parents.….!!!

  30. G-Bro says:

    My sis­ter is such a giv­ing per­son. In her 50’s …my sis­ter Marla told me ‚” She is a Step­ping stone not a Stum­bling block.”

  31. What a lucky sis­ter to have you, Dr. J!

    And your par­ents sound amazing.

    There is no end to what love and deter­mi­na­tion can accom­plish. And yes, vel­cro is a major bless­ing! I was glad for me too when it went main­stream on shoes. :)

    xo
    .-= Jan­nie Funster´s Last Fab­u­lous Post ..Texas Mir­a­cle Roses (a blog post in only 343 words — and 5 pho­tos!) =-.

  32. I love read­ing sto­ries like this one. All of us have sto­ries of love that we could and should share with oth­ers. Thank you Lance and Dr. J for shar­ing this brother’s story about an amaz­ing sis­ter, whose name I wish I knew and whose essence I sense.

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